Friday, September 7, 2012

My fight song

There are several posts churning in my head, but I will start with today and hopefully before Christmas, I will have time to recap recovery, tissue expanders and the emotional roller coaster I am riding! ;-)

Life is good and God is Great! I am back at school (half a day everyday), Sawyer is back in playschool, Jason is burning it at both ends, and we are attempting to get our groove back! If you know me well, you know I fly by the seat of my pants and a routine, well that isn't really how we roll! Oh but we are putting on our skates because radiation (and kindergarten) are coming and we've got to figure this out!

My CT Simulation was today (the same day Jason was having fluid taken off his knee and was being given a cortisone shot). It turned out to be quite the adventure. I was in the machine, it did it's thing, I came out of the machine. In walks Dr. Zagar, with his big smile and bow-tie, to tell me that I will need to be deflated on my left side in order for that tissue to not be in the way of radiation and potentially damaged. Since they are the experts, I get dressed and go back out into the waiting room and wait for my plastic surgery nurse to come down. Sue arrives, they find us a room and out comes the saline they have been expanding me with over the last 4 weeks. Have I mentioned this is tinted saline, Carolina blue! LOVE that! Back to the situation, I get dressed again, go back out in the waiting room, then back into the CT machine. It does it's thing again and then I come back out to see the nurse who says, "we have to take out more." At this point I wasn't sure if I wanted to laugh or cry! I wanted to cry because this was taking forever, I cannot stand being in machines (which this one isn't bad, so I shouldn't complain) and it, for a moment, seemed like we were moving backwards, not to mention one girl is perky, one is now deflated! :-( Instead, I laughed and became the the center of the circus show! To keep me from getting dressed, finding another room, and repeating the above scenario, Sue came in and took out more saline while I was in the CT room with an audience! I laugh because the folks seemed fascinated and asked lots of questions. I am sure they see lots of ladies with tissue expanders, but perhaps never see them being expanded or in my case deflated! (See, there is another post because it is pretty fascinating!) While still attached to tubing, just in case they needed to take out more, I go back IN the machine to come OUT to smiles saying we are finally finished! A little lopsided, but ready for Dr. Zagar to map out my radiation!

I go back next Friday for X-rays, then Monday, September 17 the countdown will start! 25 days until it's my turn to hit the gong! After chemo they sing and clap, after radiation you hit the gong. Today walking out of my over 3 hour tour of radiation, I see a nice gentlemen taking his celebratory whack at the gong, but then all of the sudden comes the UNC fight song from two members of the band! AWESOME!! Doubting I am considered a important enough alumni to receive that special treatment, but oh well, it was fun to watch and be reminded that we are oh so close to our turn! If the room was big enough, I would take you all with me to celebrate, but as long as these two (check out my new favorite picture, wherever it may be) are by my side, my fight song is playing in my heart!


**Our computer bit the dust last weekend, so overlook any errors and auto-corrects that were courtesy of my iPhone.






2 comments:

  1. So happy to hear of continued progress. You ARE so close! Praise Him from whom all blessings flow (even gongs and Carolina fight songs!)

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  2. You are such an inspiration Suzanne! Praying for you and your family. This was beautiful to read! God is so good! - Melissa Madison

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